COVID-19’s impact on carers of family members

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Researchers from Queen’s University Belfast will investigate the impact of COVID-19 on carers of family members with profound and multiple learning disabilities (PMLD).

Research has found that the crisis is having an acute impact on those with care and support needs, and has been particularly challenging for carers of family members with PMLD.

Increased pressures for carers

Even before the outbreak of the pandemic, carers often spent significant amounts of time caring for a relative. Coronavirus has significantly increased those pressures.

The Economic and Social Research Council (ESRC) project will explore the experiences of carers across the UK and Ireland.

The goal of the project is to:

  • make recommendations about service provision
  • co-create a support programme with carers, academics and the voluntary sector.

Making carers heard

Dr Mark Linden, from the School of Nursing and Midwifery at Queen’s, said:

The COVID-19 pandemic has been difficult and disruptive for us all, but carers of family members with profound and multiple learning disabilities have been severely negatively impacted.

This research is an important opportunity to work with partners across the UK and Ireland to highlight the concerns of these groups and will help to ensure that carers of people with PMLD and their experiences during this pandemic are heard.

Partners from across the UK and Ireland

This project is led by Dr Mark Linden, and includes academics from:

  • Queen’s University
  • Trinity College Dublin
  • University of Glasgow
  • University of South Wales
  • University of Sheffield.

The project also includes voluntary partners, such as:

  • PAMIS in Scotland
  • Sunderland People First
  • Brain Injury Matters
  • All Wales Forum of Parents and Carers and
  • Irish Society for Autism.

Last updated: 8 April 2021

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